Release date: 2016-06-24
When Bentley Yoder was born, his brain grew outside the skull. The doctor said that he could not survive, but he is now living very well. For 7 months, he has undergone a repair surgery to move his brain back into the skull.
Bentley's parents, Sierra and Dustin, both were 25 years old. When they had regular ultrasound at 22 weeks of gestation, they found something wrong. Bentley, still in the womb, was diagnosed with brain swelling, that is, his brain tissue bulged outward from the skull defect. The parents were told that their child might not live long after birth and that his brain would not have any function.
Sierra said in an interview: "We have no hope anyway." The parents are reluctant to terminate their pregnancy and they want to have a chance to say goodbye to their children.
But to everyone's surprise, when Bentley was born on October 31, 2015, he screamed while kicking. 36 hours after Bentley was born, Sierra and Dustin had to wear him a jumpsuit and take him home. In the next few months, Bentley gradually survived, even though his lungs were infected with staphylococci.
Although a large part of Bentley's brain tissue grows beyond the skull, he develops normally after birth, and he cries when he is hungry. Doctors questioned this and insisted that Bentley's head was just a "necrotic tissue," which could not have any function, but Bentley's behavior and normal development showed that this was not the case.
When Bentley was four months old, Sierra and Dustin took him to the Cleveland Clinic, where doctors said the baby's brain was still useful, but doctors might not be able to plug it back into the skull.
So they found Dr. John Meara of Boston Children's Hospital, whose medical team took over many serious brain swelling patients every year. After carefully examining Bentley, the doctors discovered that his growing brain tissue could not be removed because they were responsible for controlling actions, problem solving, and vision. These brain tissues must be stuffed back into the skull.
Doctors use 3D printed models to start their plans. The brain tissue outside Bentley's skull is 100 cubic centimeters, so doctors must expand his skull to accommodate these tissues. Before the surgery, Meara used a plastic model to estimate how many Bentley brain tissue his team could put back into the skull.
On May 24, the operation began. The doctors chose this day because Bentley's skull is hard enough to withstand surgery; later on, his brain tissue may rupture. The first step in the operation is to drain the cerebrospinal fluid from Bentley's brain. The surgeon then cuts his skull and gently inserts the brain tissue. The remaining bones during this process will be used to close the skull gap. The whole process lasted for six hours and the operation went very smoothly, but Bentley had to undergo some surgery to remove excess cerebrospinal fluid from the brain.
One month after surgery, Bentley was fine. But no one can guarantee how he will be in the future. It is very likely that his vision will be impaired, but it is not clear how much damage is. He will receive physical therapy next month. Sierra said: "Because his brain is very special, we have no reference objects and can only take a step."
Source: Omelette Net
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